The working group, representing patients, manufacturers, providers, payers and the research community, defined an ideal vision for healthcare and identified four areas to sustain innovation: 1) a data infrastructure to support continuous learning on a real-time basis; 2) frameworks for evaluating evidence that reflect consensus on what constitutes high-quality evidence, providing greater transparency for researchers; 3) evidence communication that ensures decision-makers who judge the value of medical advancements receive timely, accurate information; and 4) coverage and payment responsive to the evolving evidence base for standards of care.

The working group also identified actionable solutions within each of these areas:

Data Infrastructure

• Invest in standardized data

• Create a reciprocal data access network

Develop unique patient identifiers

Frameworks for Evaluating Evidence

• Enable new platforms for multi-stakeholder discussions

• Create tools for evaluating evidence

Integrate patient perspectives in the research process

Evidence Communication

• Develop and disseminate best practices in evidence communication

• Establish guidelines for incorporating new information

• Involve patients in translation and dissemination

• Advance methods for communicating uncertainty about benefits and risks

Develop a safe harbor for multi-stakeholder scientific discussions

Coverage and Payment

• Enhance pathways for innovation in novel provider payments

Ensure transparency of incentives in clinical pathways