SummaryIn 2018, Avalere partnered with CancerCare and Gabrielle Rocque, an oncologist at the University of Alabama Birmingham School of Medicine, to develop the Preparation for Shared Decision Making (PFSDM) tool.
We designed the PFSDM tool to help women with advanced breast cancer prepare to communicate with their clinicians and engage in decision-making that aligns with their personal preferences.
In 2019, Avalere validated the tool for its usability and acceptability (i.e., comprehensibility, amount of information, and suitability for decision-making) through surveys and in-depth interviews with 30 women with stages III and IV advanced breast cancer. The table below describes the diverse population of women with whom we worked.
In the chart pack, we present a summary of the results from our surveys. The survey data demonstrate that 90–100% of surveyed patients found the tool understandable, valuable, containing the right amount of information, and useful in preparing them for decision-making conversations with their doctors. All 30 patients agreed that they “value the guidance provided in this tool.” The full validation study—informed by the qualitative data from our interviews—will be analyzed and published separately.
|Participant Characteristic||Participant % (n)|
|25 to 54||63% (19)|
|55 or older||37% (11)|
|Black or African American||28% (8)|
|Hispanic, Latino, or of Spanish Origin||13% (4)|
|Other (e.g., biracial)||3% (1)|
|High school graduate/equivalent or some college||46% (14)|
|College graduate||54% (16)|
|Less than $50,000||40% (12)|
|$50,000 to $99,999||20% (6)|
|$100,000 or more||40% (12)|
|Insurance through employer||57% (17)|
|Other government program (e.g., TRICARE)||7% (2)|
|Self-purchased insurance||7% (2)|
Learn more about the tool and its development process.
In addition to developing and validating the Preparation for Shared Decision Making tool, Avalere also developed consensus-based recommendations to advance the patient centricity of value assessment frameworks. These recommendations will be released tomorrow, May 30.
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