Patient-Centered Research & Outcomes
Gain insights needed to drive organizational goals while improving patient experiences and outcomes.Overview
Amplifying the Patient Voice
Traditionally, healthcare stakeholders have used economic measures and clinical outcomes to measure value and quality, overlooking much of the patient experience. Patient-centered outcomes improve on these traditional approaches by weighing patient priorities and humanizing the treatment and recovery experience.
When patient and caregiver perspectives are understood, patients and providers can engage in shared decision making when charting the best path forward for each patient. For example, patients prioritizing quality of life may opt not to pursue treatment courses that prolong life but cause crippling side effects.
Patient-centered outcomes are now considered in regulatory decision making and may soon become a component of post-marketing requirements. Stakeholders across the healthcare industry are reaching a consensus that decisions by providers, payers, and regulators must consider patient-centered outcomes.
Turning Insights into Outcomes
We help clients access and analyze the information needed to understand perspectives and facilitate conversations between clients and key stakeholders to gain insights on the patient experience.
Translating the Patient Perspective into Meaningful, Transformative Conversations
Our subject matter experts can develop strategies and frameworks, gather and analyze data, and foster meaningful conversations among disparate groups to leverage patient perspectives for strategic decision making while enhancing patient experiences and outcomes.
Years of industry experience have afforded us access to key patient groups, which we can tailor to each client’s needs. We facilitate workshops, hold focus groups, conduct interviews, and host collaborative learnings sessions. For these sessions, we can leverage our relationships and multi-sector expertise to convene groups that include life sciences companies, payers, physicians, advocacy groups, and others. Structured collaborative learning sessions allow these groups to convene and share various perspectives in a single forum, providing clients with a valuable learning platform.
In collecting information about patient-centered outcomes, our experts in mixed-methods research, qualitative research design, and interviewing processes formulate strategies to ensure that we ask the right questions, in the right way, to the right people. We focus on criteria and measures prioritized by patients to ensure that quality is defined from a patient perspective. We also incorporate clinical insights from in-house physicians, pharmacists, and nurses, and offer healthcare providers the necessary tools to engage patients in productive conversations.
By generating these insights, we can help clients achieve their goals, which may include differentiating a product, reaching an underserved population via a health equity focus, improving treatment adherence, or collaborating with patients to chart a treatment course.

Who We Help /
Related Offerings /
collaborative learning
How We Have Helped Clients
A pharmaceutical manufacturer targeting rare diseases sought novel ways to support better treatment and management of myasthenia gravis (MG) for patients and their clinicians. We researched MG and identified opportunities to help patients improve their care experiences by providing tools and information (e.g., symptom trackers, general MG information, how to prepare for conversations with providers). Using our findings, we outlined a concept for a patient-engagement tool that patients and providers could use jointly to improve MG care.
We partnered with a major life sciences company to conduct interviews on treatment priorities and preferences with patients, providers, and caregivers dealing with relapsed or refractory diffuse large B-cell lymphoma (R/R DLBCL). These interviews produced real-world evidence (RWE) that can be applied to helping expand the use of shared decision making in second- and third-line treatment selection for this patient population.
A pharmaceutical manufacturer sought our services to identify and prioritize opportunities to partner with stakeholders to advance policy solutions addressing social determinants of health (SDOH) among people with chronic conditions. We helped the client prioritize the most relevant SDOH, identify SDOH initiatives in which it could participate, prioritize policy goals, and create a policy engagement roadmap to help improve outcomes for underserved patients with chronic illnesses.
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Featured Patient-Centered Research & Outcomes Experts
Sarah Alwardt
As president of Avalere, Sarah Alwardt leads the firm’s consulting, sales, and operational functions.
Laura Housman
Laura Housman leads Avalere’s Evidence & Strategy practice, applying her background in evidence generation, commercialization, and strategy to a broad range of client projects.
Amanda Napoles
Amanda Napoles designs and executes complex, prospective studies in clinical settings—such as physician practices, academic medical centers—leveraging real-world data to generate insights, advance the public’s understanding, and demonstrate value.
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